2025

• Identifying Gaps in Sickle Cell Disease Healthcare Resources Across Hematology Clinics in California [2025] Ali San, Catie Clyde, Dennis Yap, Susan Paulukonis, Jhaqueline Valle, Keith Quirolo
• Patterns and Predictors of Hydroxyurea Use Among Californians Living with Sickle Cell Disease [2025] Melinda Rushing, Sophia Horiuchi, Mariam Kayle, Sarah Reeves, Alexander Glaros, Susan Paulukonis

2024

• Birth Prevalence of Sickle Cell Disease and County-Level Social Vulnerability – Sickle Cell Data Collection Program, 11 States, 2016-2020 [2024] Mariam Kayle, Audrey Blewer, Wei Pan, Jhaqueline Valle, et al.
• Case Ascertainment Of Sickle Cell Disease Using Surveillance Or Single Administrative Database Case Definitions [2024] Sarah Reeves, Sophia Horiuchi, Mei Zhou, Susan Paulukonis, Angela Snyder, Shohdelle Wilson-Frederick, Mary Hulihan
• Emergency Department 30-Day Emergency Department Revisits Among People with Sickle Cell Disease: Variations in Characteristics [2024] Melinda Rushing, Sophia Horiuchi, Mei Zhou, Patricia Kavanagh, Sarah Reeves, Angie Snyder, Susan Paulukonis
• Improving the Lives of People with Sickle Cell Disease: Community Organizations and Epidemiologists Working Together, Progress in Community Health Partnerships [2024] Amanda Young, Amanda Maresh, Shammara Pope, Rae Blaylark, Sangeetha Lakshmanan, Jay Desai et al
• National Quality Indicators In Pediatric Sickle Cell Anemia [2024] Ashaunta Anderson, Wendy Mack, Sophia Horiuchi, Susan Paulukonis, Mei Zhou, Angela Snyder, Jason Doctor, Michele Kipke, Thomas Coates, Gary Freed
• Prevalence, Mortality, and Access to Care for Chronic Kidney Disease in Medicaid-Enrolled Adults with Sickle Cell Disease in California: Retrospective Cohort Study [2024] Jhaqueline Valle, Jeffrey Lebensburger, Pranav Garimella, Srila Gopal

2023

• Common Data Model For Sickle Cell Disease Surveillance: Considerations And Implications [2023] Matthew Smeltzer, Sarah Reeves, William Cooper, Brandon Attell, John Strouse, Clifford Takemoto, Julie Kanter, Krista Latta, Allison Plaxco, Robert Davis, Daniel Hatch, Camila Reyes, Kevin Dombowski, Angela Snyder, Susan Paulukonis, Ashima Singh, Mariam Kayle
• COVID-19 Infection And Outcomes In Newborn Screening Cohorts Of Sickle Cell Trait And Sickle Cell Disease In Michigan And Georgia [2023] Susan Paulukonis, Angela Snyder, Matthew Smeltzer, Ankit Sutaria, Isabel Hurden, Krista Latta, Swathi Chennuri, Elliott Vichinsky, Sarah Reeves

2022

• Hematologist encounters among patients who have sickle cell disease [2022] Sophia Horiuchi, Mei Zhou, Angela Snyder, Susan Paulukonis
• Sickle Cell Disease among Latinx in California [2022] Jhaqueline Valle, Judith Baker, Daniel Madrigal, Juana Ferrerosa, Susan Paulukonis
• Surveillance for Sickle Cell Disease – Sickle Cell Data Collection Program, Two States, 2004-2018 [2022] Angela Snyder, Sangeetha Lashmanan, Mary Hulihan, Susan Paulukonis, Mei Zhou, Sophia Horiuchi, Karon Abe, Shammara Pope, Laura Schieve

2021

• Concurrent Use Of Hydroyurea And Deferasirox In Californians With Sickle Cell Disease [2021] Trisha Wong, Jhaqueline Valle, Susan Paulukoni
• Improving Outcomes For Patients With Sickle Cell Disease In The United States: [2021] Making The Case For More Resources, Surveillance, And Longitudinal Data [2021] Julie Kanter, Emily Meier, Jane Hankins, Susan Paulukonis, Angela Snyder

2020

• Acute Care Utilization At End Of Life In Sickle Cell Disease: Highlighting The Need For A Palliative Approach [2020] Emily Johnston, Oyebimpe Adesina, Elysia Alvarez, Heather Amato, Susan Paulukonis, Ashley Nichols, Lisa Chamberlain, Smita Bhatia
• Impact Of Medicaid Expansion On Access And Healthcare Among Individuals With Sickle Cell Disease [2020] Mariam Kayle, Jhaqueline Valle, Susan Paulukonis, Jane Holl, Paula Tanabe, Dustin French, Ravi Garg, Robert Liem, Sherif Badway, Marsha Treadwell
• Using Surveillance To Determine The Number Of Individuals With Sickle Cell Disease In California And Georgia, 2005 – 2016 [2020] Aika Aluc, Mei Zhou, Susan Paulukonis, Angela Snyder, David Wong, Mary Hulihan

2017

• Emergency Department Utilization by Californians with Sickle Cell Disease, 2005 – 2014 [2017] Susan Paulukonis, Lisa Feuchtbaum, Thomas Coates, Lynne Neumayr, Marsha Treadwall, Elliott Vichinsky, Mary Hulihan
• Increased Risk of Leukemia Among Sickle Cell Disease Patients in California [2017] Ann Brunson, Theresa Keegan, Heejung Bang, Anjlee Mahajan, Susan Paulukonis, Ted Wun
• The Accuracy of Hospital ICD-9-CM Codes for Determining Sickle Cell Disease [2017] Angela Snyder, Peter Lane, Mei Zhou, Susan Paulukonis, Mary Hulihan

2016

• Defining Sickle Cell Disease Mortality Using a Population-Based Surveillance System, 2004 – 2008 [2016] Susan Paulukonis, James Eckman, Angela Snyder, Ward Hagar, Lisa Feuchtbaum, Mei Zhou, Althea Grant, Mary Hulihan