About
The California Sickle Cell Data Collection (CA SCDC) program is a public health surveillance initiative that brings together expertise in epidemiology, clinical care, data science, and community engagement.
Contributors include public health researchers and analysts from Tracking California, clinicians, and researchers from sickle cell treatment centers, advocates from community-based organizations, individuals with lived experience of sickle cell disease, and partners at the California Department of Public Health and the Department of Health Care Services.
Our Multi-Disciplinary Team
CA SCDC engages a variety of stakeholders to identify priorities, ensuring the information we collect and produce is valuable.
We work with a Multi-Disciplinary Team (MDT) of health professionals, healthcare providers, community organizations, and individuals with sickle cell disease to identify ways our data can be used to enhance policies, healthcare approaches, and treatments for individuals with SCD.
MDT Member Organizations
- California Department Of Health Care Services
- California Department Of Public Health
- Cayenne Wellness Center
- Hemophilia Council Of California
- Networking California For Sickle Cell Care
- Sickle Cell Anemia Awareness San Francisco
- UC San Diego Sickle Cell Program
- UCSF Benioff Children's Hospital Oakland And San Francisco
A program of the Centers for Disease Control and Prevention's (CDC) Sickle Cell Data Collection (SCDC) Program
A project of Tracking California
Tracking California is a program of the Public Health Institute, in partnership with the California Department of Public Health and the Centers for Disease Control’s National Environmental Public Health Tracking Program.
Tracking California works to make environmental and health data and information publicly-available, accessible and useful to a variety of stakeholders including communities, governments, academia, and private partners.
Our CA SCDC Team
Our team includes staff that focus on data analysis and compilation, health education and communications, community outreach and engagement, and program administration.